Blog
Enzyme Replacement Therapy Gives Joe a Lifetime of Opportunity
As one of only a few kids in Minnesota with Morquio A syndrome, Joe is already a unique 12 year old. But what makes Joe such a special boy goes...
Enzyme Replacement Therapy: A Novel Intervention for Rare Diseases
Roy C. Maynard, M.D., is the Medical Director for PHS. He serves as PHS’s clinical leader, working with the team to provide consultation and advice to ensure quality and...
ENFit Website Explains Changes To Enteral Connectors
If your child uses enteral supplies for their care, you have likely heard about the global ENFit changes and may already be using the temporary adapters for feeding bags,...
Marriages Feel The Impact When Raising a Medically Complex Child
Seasoned vets and newlyweds alike can tell you – maintaining a strong marriage takes work. Regardless of outside influences or personal circumstances, both partners need to dedicate time, energy...
Infusion Nurse Brings Care Full Circle With IV Antibiotics Training at His Childhood School
Every day, kids fill the seats at their school’s nurse’s office where these healthcare professionals provide care, perform health screenings, and serve as a liaison between school personnel, families,...
Patient Stories and Parent Perspectives Rule The Thrive Blog In 2016
# 5: A Parent’s Perspective: Getting Night Home Care Nursing For Your Child Marty Barnes, mother to Casey, shared a three-part guest series with PHS Thrive Blog readers, and...
7 Tips for A Parent Whose Child Just Started Infusion Therapy
It can be overwhelming to come home with a child who will require infusion therapy, whether they need it for a week or a lifetime. But as many veteran...
Palliative WHO? The Sherpas Who Help Us Navigate My Son’s Diagnosis of Uncertainty
While palliative can be a word heard frequently in the medical field, it’s one that is often misunderstood and unnecessarily concerning for parents. Today we invite you to read...